Monday, August 25, 2014

Oh ! I never thought I would blog about my son dying ..being gone ...
Its so surreal,  unreal...CRAZY!
Can not  believe it happened to us!!!
I have decided to start a blog for a few reasons:
ONE ...I am  so sad and broken, it will be therapeutic for me.
Second ...I hope to help others on this terrifying journey that we do not choose!
Third...I hope  to raise awareness to pediatric cancer and the desperate need for better research.
and hopefully get involved in raising funds for targeted therapies that are effective and safer for OUR kids.
Forth....try to focus on the blessings in our lives!

I thank you in advanced for your listening ear and any feedback would be greatly appreciated !!!

The coming week is very emotional for me ...My kids are starting school next week and IT will be the first time Elisha will not be going to school ...no registration form to be filled out, no new school clothes to buy, no spider-man lunch bag to pack.
no petting down Elisha to see if he did not sneak toys from home into the school zone.
no Elisha waiting in carpool holding onto his little sisters Shayna's hand, no frantic look for his shoes that were in the toy box.   NO ELISHA!!!



                                                   SADDEST DOOR IN OUR HOUSE!!!


Last year at this time we were after a long year of a grueling protocol surgery radiation chemo...
last year in August we were on the road  to recovery ...we were on top of the world!
we thought Elisha was clear .
We were doing intense therapies ...every day for Elisha to relearn how to walk, swallow, and get stronger.

I got him some cool school clothes ...he got so tall in spite of the harsh protocol.
we got him a cool spider-man backpack and spider-man lunch bag.(even though he did not swallow he wanted to look like the other kids..so i put lolly pops for him to suck).

The decision was to put him with the younger kids ...we felt that it would be easier for him,
He was not so pleased about it..but what a sport he was!  he made the best of it!!!
He was really happy to have Morah Darlene again and that was a great bonus!

Our happiness was short lived. Elisha had an MRI done right before Sukkot...
THE beast was back and OUR Elisha was terminally ill!
Aggressive brain tumor was taking over his precious brain...Oh what a brain he had! so smart!!!!

a week before his 6th Birthday we were told that this is going to be his last one!!!

If it was not for Hashem i don't know ..how we survived the coming nightmarish months ...
Elisha passed away April 16th 2014.
                                                                                          the nurses gift to us... last day

Our SWEET boy how we miss you!!!!

a poem by Juli Round who lost her son to cancer,
her words really resonate with me 

GOOD NIGHT OUR HERO

To be brave is to cry
But still to fight on, 
And that's what you did
Our hero, our son.

The battle was hard
We thought we had won,
But still you fought on
Our hero, our son.

The happiness you brought 
To the lives you have touched,
Will live on forever
As you are loved so much.

when we close our eyes we can see you,
When we whisper your name we can hear you,
And when we reach with our hearts we can touch you.

Goodnight our hero, our son, our Dan,
You are just a child
But you have died a man.


More about Elisha's journey and his heroic battle in future posts.....

Please pray for us for a Shana Tova and strength!
                        Shana Tova to y'all!!!
                          check out our website for Mitzva projects in honor of Elisha 
                                          www.zichronelisha.com

4 comments:

  1. Dear Devorah,
    My heart aches for the loss for you, your family and the world and all of us in it. He was such a happy child and brought lots of happiness and smiles to the people around him.
    I love you all dearly and think about y'all all the time.

    Love,
    Ruti

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  2. I belong to the medullo group. My 7 yr old grandson Lucas was diagnosed last April and we lost him to recurrence on July 15th. I am heartbroken every day all the time. I wonder if it will ever get any easier. I feel the hole in my heart and just can't imagine the pain you as parents are experiencing.I appreciate your braveness writing your blog. Thank you for sharing. I will be following you. God bless you and continue to give you peace and strength.

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  3. I am sorry to hear you had to go through this

    I wish you only happiness and simchas from now on and until moshiach comes! May Hashem heal your heart and help you get through this difficult time.

    Shamayim

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